Autoimmune Media Stories |
Scleroderma ISN/Website |
The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses.
Awilda: CREST and Morphea Scleroderma In 1971, I had the first symptoms of Raynaud's. I'm 53 years old and live in Puerto Rico…
The ISN has just released, in PDF format, our What in the world is scleroderma? (English version) brochure. Site visitors may freely read or print this brochure for distribution to their family, friends, classrooms and physicians. They may also use it to display publicly to help raise awareness of scleroderma in their community. 2-11-04.
Arianna: Early LcSSc with lung involvement, recent alveolitis, and grade II esophagitis with hiatus hernia (Italy) What I want is to struggle against this disease to stop it from beating me…
Arianna: Early LcSSc con interessamento polmonare (DLCOc=44%), recente alveolite polmonare, esofagite di II grado con ernia iatale Mi chiamo Arianna e sono una ragazza di 26 anni…
Angiola: Progressive Systemic Scleroderma (Italy) I would very much like to find other people that find themselves in a similar situation…
Angiola: Sclerodermia Sistemica Progressiva La sclerosi sistemica progressiva mi è stata diagnosticata nel febbraio 1997, quando avevo 57 anni, la diagnosi è stata immediata…
Aileen: CREST Scleroderma Oh, the wonderful feeling to have a doctor sit there and tell you that you are not imagining things…
Rose: Diffuse Scleroderma The decision to amputate was made, and the pain that kept me up in tears all night, every night was finally gone…
Marilyn: Diffuse Scleroderma Being that I was a nurse you would think that I should have picked up on this myself…
Easter (Hiwee Be-Maria): Scleroderma My name is Easter, and I'm Iraqi. About 16 years ago I began my struggle with scleroderma…
Greg: Diffuse Scleroderma and Lung Transplant Patient I asked Dr. Frank C Arnett to see if I was a candidate for a lung transplant…
Deborah Peck: Diffuse Systemic Sclerosis I first noticed my hands turning white in 1992 after my father's funeral…
Carol Langenfeld: Diffuse Scleroderma People tell me that I have earned my credentials as a "certified patient" the hard way…
Valeria: Systemic Sclerosis (Italy) I am a 21-year-old woman, and at the age of nine I was diagnosed with systemic sclerosis…
(Italiano) Valeria - Sclerosis sistemica Mi farebbe anche molto piacere sapere se esiste qualche centro, possibilmente non troppo lontano da Roma…
Pushpa: Scleroderma with Raynaud's (Bangalore, India) Around my 21st winter, the year of 1982 in Calcutta, India, is when I first noticed my nails and fingers were turning blue when exposed to the cold…
Laura W: Scleroderma, Sjögren's, Raynaud's and IBS I am glad to finally have an answer after years of tests, with no results…
Kathi: Scleroderma/Lupus I am forty-three years old and have not been feeling well for ten years…
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: