Autoimmune Media Stories |
Scleroderma ISN/Website |
Dorota Dziadzio-Kouris: ISN German Translator Dorota is our new German translator. New page, 12-22-02.
In Memory of Mom by Raymound Girouard. New member. 12-05-02.
Sherry Jo Young: ISN Fibromyalgia Guide and ISN Story Editor. Page updated and photo added. 12-02-02.
Dr. Magdalena Dziadzio, Chair of the ISN Medical Advisory is now doing research at Royal Free Hospital in London. Page updated. 12-2-02.
Linda K. Hopkins: Chair of ISN Legal Advisory Council Linda is an attorney and author of a book on intellectual property policies in the United States federal government. She has advised the Office of the President of the United States on intellectual property policy in technology programs. She will be advising the ISN Board in legal and public policy decisions. New page. 12-01-02.
(Spanish) La Esclerodermia Lineal traducida por Gabriela Hebin. 11-23-02.
(Russian) What is Scleroderma?. This new page marks the 17th language for this website. 11-21-02.
ISN Grant Writer Position Description. New page, 11-21-02.
ISN SWA Digital Artist. New page, 11-21-02.
ISN Desktop Publisher Position Description. New page, 11-21-02.
ISN Development (Fundraising) Chair Position Description. New page, 11-21-02.
ISN Information Technology (IT) Director: Position Description New page, 11-21-02.
(English) Maki Hasegawa: ISN Japanese Translator New page, 11-18-02.
Tech Museum Awards: Technology Benefiting Humanity At the invitation of the judges, the ISN's SCLERO.ORG website was nominated for this year's Tech Awards for Humanity. This award is for innovators and visionaries from around the world who are applying technology to profoundly improve the human condition. Tech Museum 10-31-02.
欢迎:硬皮病的概况 (Simplified Chinese) Welcome to SCLERO.ORG by Jie Jackson, a medical student in China. This new page is our 16th language! 10-25-02
(English) ISN Simplified Chinese Translator: Jie Jackson. Jie is a graduate student at school of the College of Traditional Chinese Medicine of Zhejiang, China. New page, 10-25-02.
(Russian version) Dr. Alexandra Balbir-Gurman, ISN Russian Translator. Dr. Balbir-Gurman is an Israeli rheumatologist. New page, 10-11-02.
(Kiswahili) Justus Bahati Wanzala: Kalimani wa Shirika la ISN wa Lugha ya Kiswahili New page, 10-12-02.
(English) Justus Bahati Wanzala: ISN Kiswahili Translator. Kiswahili (Swahili) is one of the languages of Kenya, Africa. New Page, 10-11-02.
Saba Sadiq: ISN Story Editor (Website). New page, 09-27-02.
Saba Sadiq: ISN Story Editor (Website). New Page, 09-27-02.
Erin Stanley: ISN Senior Editor. New page, 09-18-02.
(Turkish) Zor tani (Difficult Diagnosis) translated by Mehmet Kalender. New page, 08-30-02.
(Turkish) CREST Nedir? (CREST Scleroderma) translated by Mehmet Kalender. New Page, 08-30-02.
(Turkish) Skleroderma Tipleri: Genel Bakis (Types of Scleroderma) translated by Mehmet Kalender. New page, 08-29-02.
(Turkish) Cocukluk Cagi Sklerodermasi Nedir? (Juvenile Scleroderma) translated by Mehmet Kalender. New page, 08-28-02.
Dr. Alexandra Balbir-Gurman, ISN Russian Translator and ISN Russian Medical Editor. New page, 08-26-02.
(Turkish) Overlap (Ust Uste Binmis) Skleroderma (Overlap) translated by Mehmet Kalender. New page, 08-23-02.
Gwen Magnani, ISN French and Italian Translator. New page, 08-23-02.
(Turkish) Morphea Nedir? (Morphea Scleroderma) translated by Mehmet Kalender. New page, 08-22-02.
ISN Contributing Author: Dr. Vanessa Malcarne. New page, 08-21-02.
(Turkish) Cizgisel Skleroderma Nedir? (Linear Scleroderma) translated by Mehmet Kalender. New page, 08-20-02.
(Turkish) Sinirli Skleroderma Nedir? (Limited Scleroderma) translated by Mehmet Kalender. New page, 08-20-02.
(Turkish) Yaygin Skleroderma Nedir? (Diffuse Scleroderma) translated by Mehmet Kalender. New page, 08-20-02.
Tashamee Williams is the new ISN Email Support Guide. New page, 08-19-02.
(Turkish) Hikaye sunusu veya Yenileme Formu (Story Submission Form) translated by Mehmet Kalender. New page, 08-11-02.
(Turkish) ISN: Skleroderma by Mehmet Kalender of Istanbul 8-7-02; the ISN Turkish Version marks the 15th language for this website. Mehmet is a medical student in Turkey.
Mehment Kalender is the new ISN Turkish Translator. He is a 5th year medical student in Istanbul, Turkey. 08-06-02.
New ISN Guide Toni Wilcher, is our new ISN Clinical Trials Content Guide. She will keep us updated on any new clinical trials or medications. 07-03-02.
(Italiano/English) Kevin Howell. New page, 06-17-02.
Fibromyalgia with ISN Guide Sherry Jo Young new page on ISN. 06-10-02.
(Polski/English) Dr. Roy Smith. New page, 06-05-02.
New ISN Guide Sherrill Knaggs, is our new ISN News Guide. She will keep our Newsroom updated on scleroderma medical and media news. New page, 05-24-02.
(Italiano/English) Il dott. Mario Gismondi New page, 05-23-02.
Scleroderma Association of Queensland has a new email address. 04-18-02.
Raynaud's Patient Stories with ISN Guide Sherry Jo Young. New page, 03-29-02.
Scleroderma Family Registry and DNA Repository All scleroderma patients (including children) in the United States and Canada are encouraged to register! New page, 03-25-02.
(Polski) Leczenie objawu Raynauda was translated by Dr. Magdalena Dziadzio. New page, 02-21-02.
(Kannada) What is Scleroderma? page was updated by Kishori Mundargi. Page updated, 02-6-02.
Raynaud's Patient Stories. This new page was researched by Sherry Jo. New page, 03-29-02.
(Kannada) Types of Scleroderma was translated by Kishori Mundargi. New page, 01-29-02.
(Italiano) Cavo Orale was medically edited by Dr. Magdalena Dziadzio. 01-27-02.
Atrophoderma of Pierini and Pasini (APP) is similar to Morphea Scleroderma. Some doctors think it represents a late-stage Morphea. New page, 01-26-02.
Greek: Dimitra Stafilia's Story (English and Greek versions). Dimitra is the ISN Greek translator. New pages, 01-17-02.
Stockholm Challenge SCLERO.ORG has been accepted as an entrant in the prestigious Stockholm Challenge Award, the international IT-awards program that has made Stockholm a hub in a global movement trying to bridge what is usually called the digital divide. 01-16-02
Polski: Co to jest objaw Raynauda? was translated into Polish by Dr n.med. Magdalene Dziadzio. New page, 01-15-02.
Italiano: Implicazioni Cardiache was medically edited by Dr. Magdalena Dziadzio. 01-14-02.
Saskatchewan Scleroderma Self Help Group has joined the Scleroderma Society of Canada, and launched their own web page by Linda Schauf. 01-13-02.
The Kahnawake Support Group is now affiliated with the Scleroderma Society of Canada.
The Scleroderma Association of Winnipeg Inc. is now affiliated with the Scleroderma Society of Canada.
ISN: Greek by Dimitra Stafilia. ISN.
ISN: Kannada by Kishori Mundargi. ISN.
Scleroderma Society of Canada A major Canadian resource, with support groups in Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland, Labrador, Nova Scotia, Ontario, Prince Edward Island, Quebec, and Saskatchewan.
Visit the SWA's Scleroderma Sites to Surf! Main Directory. We make it easy to find scleroderma information on the Internet. All our services are free, to members and visitors alike.
Introducing our newest Scleroderma Webmaster's Association members:
Visit the SWA's Scleroderma Sites to Surf! Main Directory
Saskatchewan Scleroderma Self Help Group. Linda Schauf.
ISN: Greek by Dimitra Stafilia. ISN.
ISN: Kannada by Kishori Mundargi. ISN.
Scleroderma Society of Canada A major Canadian resource, with support groups in Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland, Labrador, Nova Scotia, Ontario, Prince Edward Island, Quebec, and Saskatchewan.
Sklerodermia. Dr n.med. Magdalen Dziadzio ISN
The Scleroderma Society 3 Caple Rd, London NW10 8AB Tel: 020 8961 4912 Email: [email protected] Kim Fligelstone, Chairperson.
Ontario: Ottawa Scleroderma Support. ISN.
India Scleroderma Support of New Delhi. ISN.
Thailand Scleroderma Support. ISN.
Arab Scleroderma Support Group (United Arab Emirates) ISN.
Starlight Video Productions (Scleroderma videos) by Bill Celnick
Asociacin de Esclerodermia de España. ISN.
ISN Magyarul; Hungarian. Torok Aron.
Ontario, Canada: Burlington/Oakville Scleroderma Support and Information Group. ISN.
Scleroderma Association of British Columbia. ISN.
Quebec: Dorval: AWISH Scleroderma Support Group. ISN.
Saskatchewan Scleroderma Self Help Group. ISN.
Irish Raynaud's & Scleroderma Society. Sheila Miley.
The Rombergs Connection. Marilyn Neal.
More Scleroderma Sites to Surf…
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: