Soy Yally, madre de una hermosa niña llamada MC que tiene siete años, hace un año le diagnosticaron morfea lineal, presenta una mancha en el miembro inferior izquierdo (toda la pierna), actualmente toma colchimedio 0.5 una pasitlla diaria y Daivonex crema todas las noches, y los domingos Metrotexato dos pastillas cada ocho dias, físicamente es una niña saludable.
Mi temor siempre ha sido el consumir indefinidamente la droga, qué efectos secundarios pueda ocasionar, sus controles se hacen periodicamente y hasta la fecha toda esta bien a Dios gracias.
Gracias por esta página y me gustaria tener contacto con todos ustedes y saber mas sobre alimentación, ejercicios, y en general la vida normal de la pequeña.
Yally Email: [email protected] Story edited 09-22-06 JTD Story posted 11-15-06 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS Acerca de la Esclerodermia Lineal ENGLISH: Yally: Morphea/Linear Caregiver Stories Juvenile Scleroderma Linear Scleroderma Morphea Scleroderma Morphea Stories Types of Scleroderma What is Scleroderma? |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.
(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina
La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.