Tengo 24 años, vivo en Colombia y padezco de morfea desde los 14 años.
Estuve en tratamiento durante casi nueve años con poca mejoría, porque la enfermedad seguía avanzando, pero desde hace algunos meses empecé un tratamiento especial con fototerapia uva 1, y he tenido gran mejoría.
Sandra C. New email address needed 08-06-09 SLE Old Email Prefix: samicigo Story edited 09-10-08 JTD Story posted 01-15-09 SLE Story Artist: Ione Bridgman Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS Acerca de la Esclerodermia English: Sandra C: Morphea ISN: Colombia ASCLER Morphea Scleroderma Morphea Stories Juvenile Scleroderma Juvenile Scleroderma Stories Medical: Diseases and Symptoms Scleroderma Experts (Worldwide) Sclero Forums (Online Support) Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.
(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina
La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.