SCLERO.ORG
Search
SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
ISN: Spanish Version (Español)
Support Groups: International
Acerca de la Esclerodermia.
Tipos de Esclerodermia.
La Esclerodermia Lineal.
Dificultades para el Diagnóstico.
Ayuda y Especialistas.
Historias 40+: Morfea, Lineal, Sistemica.

Ivone: Esclerodermia Morfea

Uruguay

Thistledown by Sherrill Knaggs, ISN Artist Hola, soy Ivone, de Montevideo, Uruguay. Les cuento que desde el año 1984, en que me diagnosticaron esta enfermedad, he llevado una vida completamente normal, sin complicaciones y a veces ni recuerdo que la padezco.

Tuve a mi hijo, quien actualmente tiene 20 años. Mi miedo era el embarazo, pero la dermatóloga me dijo que no tendría ningún tipo de complicaciones.

Mi dermatóloga me ha dicho que esto no tiene cura, pero lo mío está estabilizado. Tengo que controlarme porque tesufro de un poco de artritis y esto está relacionado.

Me despido, deseando buena calidad de vida para todos.

To Contact the Author

Ivone
Email: [email protected]
Story edited 08-09-06 JTD
Story posted 08-24-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
(Español) Acerca de la Esclerodermia
(English) Ivone: Morphea
(English) Morphea
(English) Morphea Stories
(English) Types of Scleroderma
(English) What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.

Médicos

(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina

La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

Go to Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis
 
 

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.