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ISN: Spanish Version (Español)
Support Groups: International
Acerca de la Esclerodermia.
Tipos de Esclerodermia.
La Esclerodermia Lineal.
Dificultades para el Diagnóstico.
Ayuda y Especialistas.
Historias 40+: Morfea, Lineal, Sistemica.

Georgina: Madre de Paciente con Morfea

Español

Teddy Bear by Sherrill Knaggs, ISN ArtistHola soy madre de una niña de 5 años hace como 6 meses fue diagnosticada con la enfermedad morfea, una enfermedad totalmente desconocida para mí.

Lo único que sé es que es una enfermedad incurable, por que es lo único que me explico su doctor. Yo quisiera, si alguien pudiera decirme, por favor cómo tratar o como prevenir su avance ya que me encuentro desesperada y no sé a qué especialista puedo acudir para tratar esta enfermedad.

Estaría muy agradecida si alguien me mandara alguna respuesta. Muchas gracias de antemano.

To Contact the Author

Georgina
Email: [email protected]
Story edited 07-16-07 JTD
Story posted 08-16-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Acerca de la Esclerodermia
ENGLISH:
Georgina: Mother of Child with Morphea
Juvenile Scleroderma
Morphea
Morphea Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Asociación Colombiana de Esclerodermia

Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.

Médicos

(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina

La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.

Go to Isabel: Esclerodermia Limitada Lineal
 
 

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