Hola, mi nombre es Carlos, tengo 24 años y padezco de esclerodermia lineal (en coup de sabre). Me he sometido a tratamientos y para mi apreciación sigo igual o peor. Quisiera conocer otras personas que padezcan de lo mismo para compartir opiniones y experiencias que nos puedan ser de ayuda para ambos.
Espero que me contacten a traves de mi msn.
Carlos New email address needed 11-03-06 SLE Old Email Prefix: MendozaHcarlos_82 Story edited 9-10-06 JTD Story posted 10-23-06 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Devlin |
LINKS Esclerodermia Lineal English: Carlos: Linear Scleroderma En Coup de Sabre Linear Scleroderma Scleroderma Experts What is Scleroderma? Types of Scleroderma |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Asociación Colombiana de Esclerodermia es una afiliada a la Red Internacional de Esclerodermia. ISN.
(English) Dr. Luis J. Catoggio, ISN Medical Advisory Board, Argentina
La Escuela Colombiana de Rehabilitacion. Terapia fisica en la rehabilitacion de algunos de ellos.
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