Information for Funerals, Wakes, Mortuaries and Bereaved

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About Scleroderma

Scleroderma is pronounced, sklare-oh-derma, in English.

ISN Scleroderma Brochures. You may print and use our PDF brochures. Each brochure has a full donation section on the back panel, which even accepts credit card donations.

Scleroderma is an arthritis or autoimmune disease. As such, there are hundreds of symptoms and diseases caused by scleroderma, similar to it, or associated with it. We provide support and information for related ailments, so it is very appropriate to give to the ISN in memory of anyone who has suffered or cared about the conditions listed on our Medical or Symptoms pages, and we are an excellent choice for general donations to charity.

Collecting Donations

Contacting ISN

We encourage you to call our Toll Free Hotline at 1-800-564-7099 (US), or direct dial 952-831-3091 (U.S.), or email [email protected] so that we can put an "In Loving Memory" notice on our website promptly, and to put acknowledgement information on file.

Requesting Donations

Please request donations to the "International Scleroderma Network.

Postal Mailing Address

We are a full-fledged, registered, nonprofit 501(c)(3) patient organization. We provide superb medical information, support services, and funding for top-notch peer-reviewed international scleroderma research. Our headquarters mailing address is: International Scleroderma Network, 7455 France Ave So #266, Edina, MN 55435.

You may refer people to our website at sclero.org. "Join or Donate " is one of the first options on the upper left-hand side of the site menu, on every page. (Also see ISN Donations in Memory)

Remembrance Resources for the Bereaved

Remembrance Resources. Ways in which we have dealt with our grief include donating in memory of our loved one; supporting medical research; writing a story in remembrance of them for posting on our website; and volunteering for scleroderma organizations. ISN.

Online Support 24/7

ISN's Sclero Forums provides quality information and support for scleroderma patients, caregivers and survivors, all around the clock. Sound guidelines and a well-trained team of caring support specialists provide daily email support plus photo galleries and blogs. ISN.

ISN Acknowledgements

Donor Receipts

We send all donors an email or printed receipt, which also suffices for tax purposes.

Cards for the Bereaved

We also send a "In Loving Memory" card to the bereaved, to acknowledge donation(s).

There is space to provide the acknowledgement information during the check out process for each donation method.

Newsroom Notices

We honor contributions and the memory of the deceased on our website, with prompt notices in our Scleroderma Newsroom.

Obituary Links

If donations are requested to the "International Scleroderma Network", we will link to the obituary notice, if you send us the link.

Donors, In Memory

We keep a longterm listing of Donors, In Memory on our website.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: