Scleroderma Webmaster's Association Directory: International Listings

International Scleroderma Support Groups

Also see: Languages and Countries (Main Page)

Africa

Afrikaans and English-speaking South Africans Scleroderma Email Support Person is Marthie Duminey, email MDuminey@omnia.co.za. Read Marthie's Story. If you are living in South Africa and are experiencing symptoms or are diagnosed with scleroderma, please become a family member. We need you, to give you a warm hug and a chat and vice versa. Also caregivers, family or friens. We invite you all to feel like a butterfly winging it from flower to flower in a lovely sunny spot,beautiful,warm and nourished. ISN.

(Kiswahili) Kalimani wa Shirika la ISN wa Lugha ya Kiswahili ISN.

(English) ISN Kiswahili Translator: Justus Bahati Wanzala ISN.

Arabia

Arab Scleroderma Support Group (United Arab Emirates) ISN.

Argentina

ISN: Spanish Version. Dr. Hernando Rendiles and Gabriela Hebin ISN.

Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos.

Asociacion Argentina de Esclerodermia Nieves Cavilla.

Australia

Australia: Main Listing. ISN.

Jenny Ryan Foundation. ISN.

Scleroderma Association of NSW (Sydney). ISN.

Scleroderma Association of Queensland, Inc. ISN.

Scleroderma/Lupus Support Society of Newcastle, NSW. ISN.

Belgium (Belgique)

ASSOCIATION des PATIENTS SCLERODERMIQUES DE BELGIQUE. ISN.

Brazil (Português)

ISN: Português Version. Ana Celia Castro and Bernardo Dania

Colombia, South America

Asociación Colombiana de Esclerodermia. Francisco Castellanos, ISN.

Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos.

ISN: Spanish Version. Dr. Hernando Rendiles and Gabriela Hebin ISN.

Canada

Canada: Main Listing. ISN.

BC: Scleroderma Association of British Columbia. ISN.

Manitoba: Scleroderma Assn of Manitoba, Inc. ISN.

Ontario: Burlington/Oakville Scleroderma Support and Information Group. ISN.

Ontario: Pembroke Scleroderma Support Group. ISN.

Ontario: Ottawa Scleroderma Support. ISN.

Québec : Dorval: AWISH Scleroderma Support Group. ISN.

Québec : Kahnawake Scleroderma Support Group. ISN.

Québec: Sclérodermie. Robert Gravel.

Saskatchewan: Scleroderma Assoc. of Saskatchewan (SASK). Linda Schauf

Saskatchewan: Scleroderma Assoc. of Saskatchewan (SASK). ISN.

China (Chinese)

ISN: Simplified Chinese Version. Jie Jackson.

ISN Simplified Chinese Translator: Jie Jackson. ISN.

Denmark

Mr N B Sorensen, Danish Raynaud's & Scleroderma Association, Marievej 25, 3060 Espergaerde, Denmark

France (Français)

ASSOCIATION des SCLERODERMIQUES de FRANCE. Dominique Godard

Québec: Sclérodermie. Robert Gravel.

ISN: French Version by Françoise Kurzen on ISN.

(Français) ISN French Translator: Françoise Kurzen. ISN,

(English) ISN French Translator: Françoise Kurzen. ISN.

(English) ISN French & Italian Translator: Gwen Magnani ISN,.

Germany (Deutsch)

ISN: Deutsch/German Version. Tudor Ionescu and Dorota Dziadzio-Kouris, ISN.

Frau Beate Röpke, Walbecker Str.47, 39110 Magdeburg, Phone: 0049-0391-7318419.

Sklerodermie Selbsthilfe e.V.
Geschäftsstelle
Friedhofstrasse 16
74076 Heilbronn
Tel.:07131-161656
Fax:07131-161657

Skleroderma Liga: Unter dieser Adresse kann eine Liste mit Informationsmaterial zur Sklerodermie angefordert werden. Scleroderma Liga e.V. Kelterstr. 23, D-76227 Karlsruhe. Email Christine: Ch.Stotsches@t-online.de

Greece (Greek)

ISN: Greek by Dimitra Stafilia ISN.

ISN Greek Translator: Dimitra Stafilia. ISN.

India (Kannada)

Kannada is one of the many languages of India.

ISN: Kannada Version by Kishori Mundargi, ISN.

Scleroderma (Systemic Sclerosis) Calcutta - Dr. Debabrata Bandyopadhyay.

ISN Kannada Translator: Kishori Mundargi. ISN.

India Scleroderma Support of New Delhi. ISN.

Indonesia

ISN: Indonesian Version by Iona Carina, ISN.

Ireland

The Irish Raynaud's & Scleroderma Society, P.O. Box 2958, Foxrock, Dublin 18, Ireland Tel/Fax Dublin (01) 202 0184, email info@irishraynauds.com. IRSS

Israel (Hebrew)

The Israeli Scleroderma Support Group. SD A -Z.

ISN: Hebrew Version. Dina Davidoff, SD A -Z.

Italy (Italiana)

Conoscere la Sclerodermia (Site offline now) Gianalberto Passoni

ISN: Italian Version Gianalberto Passoni, Dr. Magdalena Dziadzio, and Dr. Mario Gismondi, ISN.

ISN Italian Translator: Dr. Mario Gismondi, SD A -Z.

ISN Italian Translator: Dr. Magdalena Dziadzio, SD A -Z.

Yahoo! Gruppi Italia Sclero-IT. Benvenuti nel gruppo di supporto per i visitatori del sito web SCLERO.ORG, la versione Italiana del sito www.sclero.org.

Japan

強皮症とは？ by Maki Hasegawa, ISN

ISN: Japanese Version by Maki Hasegawa, ISN.

ISN Japanese Translator: Maki Hasegawa, ISN.

Magyarul (Hungarian)

ISN: Magyarul (Hungarian) Version Torok Aron, ISN.

Malaysia (Bahasa Malaysia)

ISN: Malaysian Version. ISN.

ISN: Tentang Scleroderma Yunus Hassan, ISN.

Netherlands (Dutch)

Mr Peter Berkers, Vereniging Van Vaatpatienten, Bisonspoor 3004, 3605 LV Maarssen, The Netherlands.

ISN: Nederlandse/Dutch Version. Ans Mens, ISN.

New Zealand

New Zealand Arthritis and Scleroderma Support Groups. ISN.

Pakistan

ISN Contributing Author: Dr. Asim Iqbal, ISN.

Poland (Polski, Polish)

ISN Polski Version Dr n.med. Magdalena Dziadzio, ISN.

(Polski) ISN Polish Translator: Dr n.med. Magdalena Dziadzio, ISN.

(English) ISN Polish Translator: Dr. Magdalena Dziadzio. ISN.

Portugal (Português)

ISN: Português Version, Ana Celia Castro and Bernardo Dania.

Romania (Romana

ISN: Romanian Version. by Krista Lurtz ISN.

Russia (Russian)

ISN: Russian Version. Yelena Makarov, ISN.

ISN Russian Translator: Yelena Makarov. ISN.

Д-р Александра Бальбир-Гурман Dr. Alexandra Balbir-Gurman, ISN.

ISN Russian Translator: Dr. Alexandra Balbir-Gurman, ISN.

South America (Español, Português)

Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos.

Asociacion Argentina de Esclerodermia. Nieves Cavilla.

Asociación Colombiana de Esclerodermia, Francisco Castellanos, ISN.

Escleroderma de A a Z (Português ) Ana Celia Castro and Bernardo Dania.

Grupo de Apoyo de Venezuela (English) Matilda Acosta, ISN.

Grupo de Apoyo Venezolana contra la Esclerodermia (Español) Dr. Hernando Rendiles.

La esclerodermia desde la A hasta la Z (Español) Dr. Hernando Rendiles and Gabriela Hebin, ISN.

Spain (Español)

La Esclerodermia desde la A hasta la Z, Dr. Hernando Rendiles and Gabriela Hebin, ISN.

Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos.

ASOCIACIÓN de Esclerodermia de España. ISN.

Thailand

Thailand Scleroderma Support. ISN.

Turkey (Turkish)

A'dan Z'ye Skleroderma by Mehmet Kalender, ISN.

(Turkish) ISN Turkish Translator: Mehmet Kalender. ISN.

(English) ISN Turkish Translator: Mehmet Kalender ISN.

United States

U.S. Support Group Listings. ISN.

United Kingdom

Raynaud's and Scleroderma Association, 112 Crewe Road, Alsager, Cheshire ST7 2JA Great Britain. Telephone (+44 (0)1270 872776), Fax (+44 (0)1270 883556), Email info@raynauds.org.uk. Anne Mawdsley, Director.

The Scleroderma Society PO Box 581, Chichester, PO19 9EW, Telephone: 020 7000 1925, Advice Line: 0800 311 2756, Email: info@sclerodermasociety.co.uk Kim Fligelstone, Chairperson.

Venezuela

ISN: Spanish Version. Dr. Hernando Rendiles and Gabriela Hebin, ISN.

ISN: Grupo de Apoyo de Venezuela (English). Matilda Acosta, ISN.

ISN: Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos.