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| Patient & Caregiver Stories Main Menu |
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| Scleroderma Story Collections |
| SCLERO.ORG Stories. Over 800 patient, caregiver and survivor stories from around the world, including stories in many languages, including French, Italian, Romanian, and Spanish. Other stories on A-Z include: |
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| Blog: Jackie Sue We Love You. Jackie has GVHD. THe blog covers her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic. Bruce and Jackie. (Also see: Graft vs. Host Disease, GVHD ) |
| Blog: Living With Hope. I have scleroderma, avascular necrosis, cervical spinal disc disease, pulmonary fibrosis, pulmonary aterial hypertension, and several other things that go with these diseases. I was diagnosed in 1991. I am 56. Brian, my husband was diagnosed 3 years ago with early onset Alzheimer's. He is 57. Dee Dee Hunt. |
| CARE.TV Owner James Barclay was misdiagnosed with scleroderma. |
| Chasing the Cure. In this book, follow Doris' courageous journey in dealing with an autoimmune disease and sifting through the maze of doctors and treatments, including a stem cell transplant. Doris Razo. |
| Denelle's Journal. A journal of Denelle's experience at Northwestern during her stem cell transplant. |
| Hope and Heart by Lisa "Peanut" Volz. Her scleroderma story and stem cell transplant experience. |
| Amy Daniels' Blog on Clinical Trial at Northwestern Amy Daniels |
| Kealy's Journey with Linear Scleroderma from Mom's Perspective. Terry Bullard. |
| Living with Scleroderma Shirley Wright |
| Sharon's Stem Cell Transplant Blog, "Spreading our wings in Windy City". Sharon and Craig. |
| Sjögren's Syndrome by Lynne Messina (a lovely collection of patient stories) About 20% of Scleroderma patients also have Sjögren's Syndrome. |
| Please see Scleroderma Sites to Surf! for more Scleroderma stories. |
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| Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button... |
| (Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo... |
| (Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años. |
| Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite... |
| (Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito... |
| Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for... |
| (Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on... |
| More New Stories: November 2008 |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
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