|
| | Mobile Devices: | | | | | | |
|
|
| Patient & Caregiver Stories Main Menu |
| |
| Stories in English: V | | Val: Systemic Scleroderma I am afraid to find out too much about the disease because I do not want it, but I do wonder what is going to happen to me next... | | Valeria: Systemic Sclerosis (Italy) I am a 21-year-old woman, and at the age of nine I was diagnosed with systemic sclerosis... | | Valerie: Mother of Morphea Patient We noticed that our son was developing a purplish "rash" on his left leg when he was about four years old... | | Vanessa: Linear Scleroderma My older sister found a way to cover up the nasty disease on my forehead. Bangs! It was a great idea... | | Veronica: Sjögren's Syndrome (Italy) I am a 30-year-old woman and I have been suffering for three years from Sjögren's Syndrome with highly positive anti-SSA antibodies... | | Stories in English: W-X |
| Wade: Scleredema vs Scleroderma At first look, my doctor thought I might have scleroderma, but after doing blood work, they said my tests came back negative... |
| Walter: Father of Scleroderma Patient In November he received his diagnosis of scleroderma.He is the best son a father could ever hope to have... | | Weesie: Crest/Raynaud's I have come to feel that I am am easy pickings for the majority of physicians since they know that there is no cure... | | Wendy: Morphea My diagnosis was back when I was in junior high school... | | Wendy B: Mother of Daughter with Morphea and Vitiligo Does anyone else have Morphea and vitiligo? And what is the outcome? | | Wendy L: CREST Syndrome In 1987 I was diagnosed with Non-Hodgkin's Lymphoma. I received highly toxic chemotherapy, and at a later date radiotherapy... | | Wes C.: Brother of Systemic Sclerosis Patient Just days ago, my sister Michelle was diagnosed with systemic sclerosis, after being misdiagnosed for almost two years... | | William M: Scleroderma or Lupus I had to give up my career of being a registered nurse (RN) over two years ago due to total disability... | | Stories in English: Y | | Yally: Dermatitis with Linear/Morphea My daughter has a spot on her left leg, that almost covers it completely... | | Yolima: Diffuse Scleroderma I was misdiagnosed for more than a year with so many diseases and given all types of medication for different problems except for the real disease... | | Yvonne Frasure: CREST and Fibromyalgia I no longer go to the doctor because I simply cannot afford it. I cannot get insurance so everything is out of pocket... | | Yuri: CREST Syndrome Now, one month before my nineteenth birthday, I live with CREST Syndrome, rheumatoid arthritis, acid reflux and anemia... | | xStories in English: Z | | Zuly: Morphea I would like to help people who suffer from it and get to know others with the same illness... | |
|
| Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button... |
| (Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo... |
| (Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años. |
| Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite... |
| (Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito... |
| Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for... |
| (Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on... |
| More New Stories: November 2008 |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
|
| Keep on Surfing! |
| Go to How to Submit Your Story |
|
|
|