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Tracy: Undiagnosed
My fingers and toes turn white and become completely numb.

[Macaw] I have been experiencing extreme sensitivity to the cold. My fingers and toes turn white and become completely numb. I have seen a doctor, and he has run two antinuclear antibody (ANA) tests. They were both positive.

My problem is, my doctor is not telling me anything. He wants to wait another six months to test my ANA again. I do not know if the wait and see approach is the best way to handle this. Should I find a specialist, or wait for a diagnosis?

I would really appreciate hearing from somebody who has been diagnosed. Not only would I like to hear how the diagnosis came about, but also what the chances are that I have scleroderma if at all possible. My only other symptoms are fatigue and a little joint stiffness in my fingers.

Please share your story with me. I am really tired of waiting and wondering. Thank you very much.

To Contact the Author
Tracy
New email address needed 7-13-03 SLE
Old Email Prefix: tjak4
Posted 11-19-00 SLE
Story edited 7-13-03 SLE

Story Artist: Shelley Ensz
LINKS
ANA Antibody Tests
Difficult Diagnosis
Raynaud's
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Trish: Spouse of a Diffuse Scleroderma Patient
 
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