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Tore: Linear Scleroderma
Italian

Sheltered Harbor by Sherrill Knaggs, ISN Artist About eight months ago, in December of 2006, I realised I had a white spot in the skin above my tibia in my right leg (from below the knee all the way down to the foot), surrounded by a red aureola roughly 15 cm long and 10 cm wide. The skin and the subcutaneous tissue were hardened. It seemed as if the skin were completely attached to the bone and it would be impossible to remove it.

At first I thought that this numbness had been caused by hitting myself with something while hiking, and that it should disappear quickly. However, as time went by, the patch extended, and the hardening, instead of going down, got worse, involving more and more parts of my leg, all the way until my knee.

Many check-ups, incluiding orthopedicians, didn't amount to much, until in mid-june of 2007 a skillfull dermatologist diagnosed segmented sclerodermia (wh I believe he meant to say linear scleroderma ).

After the usual exams (biopsy, blood, etc.), to rule out the systemic form, I started and followed for 40 days, a therapy based on cortisone and hydroxychloroquine (until July 30th), that seemed to have possitive effects (the heat I used to feel in the affected area lowered in intensity).

Starting on August 1st, I am only taking piascledine to soften the muscles, and the skin involved. I still have the impression that the illness is progressing, and I would be interested in getting to know people with the same illness, or similar experiences.

To Contact the Author
Tore
Email: t.congiu@tiscali.it
Story edited 09-02-07 JTD
Story posted 09-13-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
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Tore: Sclerodermia Lineare
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ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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