TV Video: Hannah - Health Insurance Story. View her fight for insurance coverage for the SCOT Trial, with David Becker, ISN Assistant News Guide.
Tackle Scleroderma! Join/Shop/Donate
SCLERO.ORG by the nonprofit International Scleroderma Network (ISN) is a full-service nonprofit charitable foundation providing stellar research, support, education and awareness
Search sclero.org:

Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 ;2009
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Tina Lech: Diffuse Scleroderma
Instead of catching it with the glove, I caught it with my face.

Tina Lech and her son.It all started about six years ago. I was very active, alive, mother of three who were all in school. I was out playing baseball with my children and a few family and friends. I was of course the picture/hind catcher. The ball got hit over a fence and thrown back in to me. Well, instead of catching it with the glove, I caught it with my face. Which caused a broken eye orbit, broken cheek bone, plastic surgery and steel pins to fix it all. It also was the start of my health problems. I never did recover!

I started having bad pain and stiffness all over my body, I stayed so tired all the time, all I wanted to do was be left alone, and to stay in bed.

I saw several doctors, even had Epidural steroid injections in my spine and Facet injections in my lower back. I was running into door frames, furniture and people. I started shaking in my hands. But the doctors in my small home town just could not find anything wrong with me.

My spouse at the time told me and other family members that I was not sick, just lazy. I started to believe that myself. But time did not change things for me, the pain and feeling tired was worse.

With my at-the-time-spouse, family and doctors thinking I was putting on an act, I wound up getting a divorce, and staying away from my family and my doctors. This lasted for a long while.

Then I met my angel, David. To make a long story short we got married and moved to Little Rock, with David knowing I was sick, and getting me to good doctors that could help.

I saw Dr. Shinder, a pain care specialist. He thought I had Parkinson's. He took many tests and an MRI, then called me about two days later and told us I had a growth, in the pineal glad area of the brain. Also that I had an underactive thyroid. About a week and a half later, Dr. Shinder called again and told me something was really bad in my test and I needed to come in as soon as possible.

We went and I was told that I had scleroderma. I then got an appointment with Dr. Houk, a rheumatologist. He did an exam, then told me I also have fibromyalgia. I was put under so many meds, plus light duty at work — to the point my boss told me they did not need me any more!

I had in all this time filed for SSD (Social Security Disability) and got turned down. I was so depressed and felt so useless, I did something really stupid, I took all my pills at one time, why wait for all this stuff to kill me, I'll end it all right here and now!

Wrong! My spouse, who I will always love for stopping me, rushed me to the hospital, and I was in the intensive care unit for three days and three nights, I could not even breath on my own. Then I got a nice little stay on the psychiatric ward; boy was that something!! Never again, not me!

It is now the end of 1998 and things are starting to look really up for David and myself. I stay home now. I am being a good wife. I have won my SSD case. I should start getting the check in a month or so. It's not much but it will help!

David and I have a great relationship, my family is on my side, and a few friends have even called to say they are sorry for not believing in me.

To my SD family, my Fibro family, and to my blood family: I LOVE YOU ALL VERY MUCH! THANKS FOR BEING HERE FOR ME! Could not HAVE DONE IT WITHOUT YOU ALL :') I did not put everything in here, that would have been a novel. LOL!

To Contact the Author
Tina
New email address needed 09-14-06 SLE
Old Email Prefix: TinaLech
Posted 12-15-98 SLE
Tina was our very first site visitor to submit her story.
Thank you, Tina!
LINKS
Depression
Fibromyalgia
Scleroderma
Suicide
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Tina M: Keloids
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
© Copyright 1998-2009 International Scleroderma Network
All Rights Reserved