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Tina G: Systemic Scleroderma and Interstitial Cystitis
Interstitial cystitis is a bladder disease that destroys
the lining of the bladder and causes it to harden and shrink.

Flowers for TIna by Shelley Ensz I have systemic scleroderma. About twelve years ago and prior to being diagnosed, I was diagnosed with interstitial cystitis (IC). Interstitial cystitis is a chronic inflammation condition of the bladder that can destroy the lining of the bladder and cause it to harden and shrink. The symptoms are frequent urination, pain, and pressure. Unlike common cystitis, interstitial cystitis does not respond to conventional antibiotic therapy, and it is probably not caused by infection. There is no cure and after many different treatments, my bladder was removed in 1992.

Two to three years later, I developed muscle and joint pain, hypertension , Hashimoto's thyroiditis , arm numbness, and confusion. After seeing many doctors, including rheumatologists, I was diagnosed with systemic scleroderma. Therefore, I am interested in the relationship between interstitial cystitis and scleroderma.

Thanks for your support.

To Contact the Author
Tina G.
New email address needed 01-24-05 SLE
Old Email Prefix: trudy2t
Story posted 11-28-00
Story edited VH1: JTD 9-9-03

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
LINKS
Hashimoto's Thyroiditis
Hypertension
Interstitial Cystitis
Skeletal Involvement
Voices of Scleroderma Volume 1
What is Scleroderma?
PDF Brochure: What is Scleroderma?
This Story is Featured in Voices of Scleroderma Volume 1
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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