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Terri: Subcutaneous Morphea
My dermatologist also said that there was nothing that could be done.

Coral Geranium by Sherrill Knaggs, ISN Artist I woke up one year ago today with a circular indentation in my upper arm. I was finally diagnosed with deep morphea (or subcutaneous morphea) around mid February 200, after having a biopsy. My dermatologist also said that there was nothing that could be done for it.

I started taking extra vitamin E supplements at night in addition to my morning multivitamin and calcium. At night, I also take vitamin A, C, calcium with zinc and magnesium. I also take flax seed and salmon oil once or twice a day, and I take glucosomine (with chondroitin and msm) three times a day.

So far, I have been very fortunate. The doctor had originally told me that the indented area would never fill back in (without using restylane filler administered by a plastic surgeon) but amazingly, the area is not as deep as it was at first.

I read that vitamin E can help, and I truly believe it has helped me. The disease (indentation) has not spread to other areas yet and I am praying that it never will.

I did, however, start experiencing some joint pain in the spring in my left hand and shoulder. This is what prompted me to start taking glucosomine supplements, which seems to help, somewhat. I maintain a healthy diet (vegetables, protein, and fruit) and work out at the gym.

To Contact the Author
Terri
Email: oceanre@msn.com
Story edited 11-30-07 JTD
Story posted 01-21-08 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
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ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Terry: CREST
 
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