| Teresa: Scleroderma | |||||||||
| I was just diagnosed a few hours ago... | |||||||||
I have not felt quite right for a few years. First, I was diagnosed with Raynaud's (cold hands) phenomenon. They told me to stay warm. No big deal. When the digital (finger) ulcers grew on my middle finger, my doctor was amazed. He had never seen anything like that before. On my follow-up visit, he told me to stay warm. No big deal. When my heart and chest started to act crazy, I decided to surf the Internet for answers. When I found this website, all of my symptoms had names and faces. Oddly enough, they belonged together. Although my entire medical history was explained there, I thought surely I must be wrong. My brother teased me about my Internet diagnosis. Even though something was not quite right, I could not have this terrible disease. Today, I saw a doctor who was familiar with Raynaud's phenomenon and types of scleroderma. Yesterday, I had insurance, but today I have to go on Medicaid because I have a life-threatening disease. And I am mad! The most ridiculous thing about this is that I am angry because I am going to get ugly and old and because I do not have the money to be sick. I have not even begun to deal with the rest of it. Obviously, I do not yet know the proper terminology for any of these symptoms. I guess time will take care of that. Please pray for me and I will pray for all of you. |
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