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Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!

PDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.

Patient & Caregiver Stories Main Menu

(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Stephanie: Morphea Scleroderma

I think it is affecting my joints.

In the year 2000, I finally received a diagnosis of localized morphea scleroderma.

I have bruise-like patches all over the trunk of my body. The spots grow under my breast, on my side, stomach, back, and part of my arm. It has confined itself to the left side of my body.

My doctor, at the time, told me not to worry, but at the same time said there is no cure. I think it is affecting my joints. I feel like I have arthritis at twenty five years old.

To Contact the Author

Stephanie
New email address needed 08-06-09 SLE
Old Email Prefix: Sgoens312
Story posted 10-28-01
Story edited VH1: JTD 9-8-03

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin

LINKS
Morphea Scleroderma
Voices of Scleroderma Volume 1

This Story is Featured in Voices of Scleroderma Volume 1

The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

New Personal Stories

Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...

Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...

Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...

Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...

Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...

More New Stories: May-July 2010

We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.

Go to Stephanie D: Scleroderma/Heparin-Induced Thrombocytopenia

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