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Sofia: Systemic Scleroderma

Argentina

Pink Lillies by Sherrill Knaggs, ISN Artist Hello everyone. I would like to share with you that eight months ago I was diagnosed with systemic scleroderma. I am thirty-five years old and I have two little sons, one is five, the other one is two. I shouldn't even say how distressed and suffering we are because of the news.

I went to a doctor who treats immune system diseases and he is giving me a treatment of antioxidants and other natural medicine. I take medical tests every three months and my illness hasn't grown, it is stationary. I feel very energetic, and in a very good mood.

I gave interviews in Argentinean television so that those who suffer from it do not lose hope. There IS a medicine that allows you to have a very good quality of life.

The doctor's name is Ernesto Crescenti, he is Argentinean, and his office is in Córdoba and Gallo.

I wish the best to all of you, practice pilates, don't eat greasy foods, and overall, being emotionally stable helps the treatment a lot.

We are in this fight, let's not put our arms down, let's not lose our smile. Let's not give up hope that there will be a definitive cure. Let's achieve our dreams, because we are only sick, not dead.

I wish you the best, I hug you knowing what you are going through. Be strong, fighting makes us stronger.

To Contact the Author
Sofia
Email: monigreco@gmail.com
Story translated 04-22-06 AL
Story edited 04-22-06 JTD
Story posted 06-16-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Systemic Scleroderma
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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