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Scott: Friend of Patient with CREST
She needs someone to talk to that is fighting her fight.

Abstract Birds of a Feather by Shelley EnszBack in 1970 or so, I saw this happy wonderful little girl at our neighborhood swimming pool. I fell in love and forty years later I still am.

I found her again, still happy, still wonderful and full of life. Only this time around she has an awful disease, CREST. She is newly diagnosed and only learned of it a year ago. One of her first doctors said she had five years to live. Why would he say such a thing? I have read story after story of people having CREST for decades.

It killed her son's way of life and did not do me much good either, yet this woman fights on and tells us not to worry. But when she is by herself she is so alone. She needs someone to talk to that is fighting her fight.

Believe me, this girl has given her all to this world and asked for nothing back. I am lucky and blessed to have known her.

If you could help please write her and maybe give her some more ammo to fight on. Her email is below. Thank all of you so much!

Keena's friend and now yours,

Scott

To Contact the Author
Keena
Email: kzplantdesigns@yahoo.com
Story edited 04-21-09 JTD
Story posted 06-15-09 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Thompson Devlin
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ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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