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Rubie: Linear Morphea Scleroderma
My mum noticed a small rough patch on my abdomen.

Apricot Hibiscus by Sherrill Knaggs, ISN Artist My story started about thirteen years ago on my first summer outside. At the age of one I had my first summer out and about in the sun. My mum noticed a small rough patch on my abdomen. She immediately took me to the hospital as she thought it was a burn.

The doctors told her it was not a burn but ran lots of test and biopsy and found nothing. I was referred to a dermatologist and was finally diagnosed with linear morphea at the age of four.

Now at fourteen, the morphea has spread dramatically, mostly down the left side of my body. I have the pigmentation down the left leg, across the abdomen, the back and a small patch on my left ankle.

My treatment at the moment is working extremely well. The morphea has stopped spreading.

To Contact the Author
Rubie
Email: Withheld
Story edited 12-10-07 JTD
Story posted 01-15-08 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
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ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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