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Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!
Frog jumping for joy by Shelley EnszPDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.
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Rubie: Linear Morphea Scleroderma

My mum noticed a small rough patch on my abdomen.

Apricot Hibiscus by Sherrill Knaggs, ISN Artist My story started about thirteen years ago on my first summer outside. At the age of one I had my first summer out and about in the sun. My mum noticed a small rough patch on my abdomen. She immediately took me to the hospital as she thought it was a burn.

The doctors told her it was not a burn but ran lots of test and biopsy and found nothing. I was referred to a dermatologist and was finally diagnosed with linear morphea at the age of four.

Now at fourteen, the morphea has spread dramatically, mostly down the left side of my body. I have the pigmentation down the left leg, across the abdomen, the back and a small patch on my left ankle.

My treatment at the moment is working extremely well. The morphea has stopped spreading.

To Contact the Author
Rubie
Email: Withheld
Story edited 12-10-07 JTD
Story posted 01-15-08 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
LINKS
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Juvenile Scleroderma
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ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
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