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Pamela W: Morphea Scleroderma
I jokingly refer to this as my 'Catalina scar.'

Orange Flower Crosstitch for Pamela by Shelley Ensz About ten years ago, my problem started with what I thought was a bruise about the size of a dime under my arm. At first I was told it was a fungus and given cream to treat it, but it did not work. The purplish spot began to get bigger, turning white in the middle. I went to several doctors, one of whom simply said it might be scleroderma and sent me on my way. I was horrified! I thought for sure I was going to die!

Then I found a dermatologist who did a biopsy and said it was morphea scleroderma. She explained that it is caused by a buildup of collagen under the surface of the skin, which causes discoloration and hardening of the skin. She also told me that morphea stays at the surface of the skin and does not affect the organs or cause death. She said that usually morphea would lighten and sometimes even disappear in a couple of years.

She started injecting steroids into the hardened area to soften it. Once the spot was softened, she tried to get rid of the dark color. First, we used a roll-on preparation, but that did not work. Next, we tried the patches, but they only irritated my skin, making it red and very painful. We finally gave up and agreed to let nature take its course, hoping the discolored area would indeed disappear in a couple of years.

Now, ten years later, I have an enormous bruise-like thing under my arm that has also spread near my right breast. Another patch stretches about six inches across my lower back. I jokingly refer to this as my 'Catalina scar.' In case you are unfamiliar with it, Catalina is an island off the coast of Southern California.

Recently, I have noticed the entire underside of my right arm is starting to discolor. Other than the disturbing appearance, the only thing I am bothered with is incessant itching.

I was hoping that after ten years someone might have found a cure or at least a way to stop the discoloration. I am not finding anything.

To Contact the Author
Pamela W.
Email: charlidawn@aol.com
Story posted 4-25-01
Story edited VH1: JTD 8-25-03

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
LINKS
Morphea Scleroderma
Voices of Scleroderma Volume 1
This Story is Featured in Voices of Scleroderma Volume 1
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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