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Myrianisa: Daughter of a Severe Scleroderma Patient
At the same time, she was also diagnosed with lupus, Raynaud's, MCTD, Pulmonary Fibrosis and Fibromyalgia.

Bullocks Oriole by Judy Tarro, ISN Artist My mother was diagnosed with scleroderma six years ago. At the same time, she was also diagnosed with lupus, Raynaud's, MCTD, pulmonary fibrosis and fibromyalgia.

She has had five fingers amputated due to severe digital ulcers. Her health has severely declined in the past year. She is scheduled to have two more fingers amputated this month. Hyperbaric treatment has helped with the healing after surgery, but has not helped to prevent future ulcers.

She is now on three liters of oxygen constantly. I hope to find something to help her. She is on a variety of medications including coumadin, pletal, prednisone, and procardia.

Her condition is severe and not getting any better.

To Contact the Author
Myrianisa
Email:Withheld by request
Story edited 11-17-05 JTD
Story posted 01-27-06 SLE

Story Artist: Judy Tarro
Story Editor: Judith Devlin
LINKS
Digital Ulcers
Fibromyalgia
Lupus
MCTD
Pulmonary Fibrosis
Raynaud's
Raynaud's Stories
Scleroderma
ISN Artist: Judy Tarro
Judy Tarro, ISN ArtistJudy Tarro, ISN Artist, created the digital photo to illustrate the story on this page. She is also owner of SD World website and email list.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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