Melissa H: Hereditary Hemorrhagic Telangiectasia (HHT)

Patient & Caregiver Stories Main Menu

(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 ;2009

Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Melissa H: Hereditary Hemorrhagic Telangiectasia (HHT)

I have big red marks on me which I get teased about,
but not as much as I used to.

Hi, I am Melissa and I was born with hereditary hemorrhagic telangiectasia (HHT). My brother and I both have it, but I have it much worse.

I have big red marks on me which I get teased about, but not as much as I used to. I also have a bad liver, so I am never allowed to drink alcohol. My face is usually red from my heart beating too fast, and my skin is blotchy.

I do not really care any more as I might be getting the red mark removed with laser treatment when I am older, which will be really good. If any one else has this disease, please email me. It would be really cool to hear from you.

To Contact the Author

Melissa H.
New email address needed 07-18-06 SLE
Old Email Prefix: missywasup
Story posted 08-12-04 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin

LINKS
Telangiectasia

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

New Personal Stories

Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...

(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...

(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...

Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...

More New Stories: August-November 2009

We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.

Go to Mendyon: Mother-in-Law of CREST Patient


SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
Post a message in Sclero Forums! Email: isn@sclero.org English Email Form Español Email Form Italiano Email Form	International Scleroderma Network (ISN) 7455 France Ave So #266 Edina, MN 55435-4702 United States	Toll Free Hotline in U.S. Hours: 9am-3pm CST only. Please leave a complete message, in English. 1-800-564-7099 Direct Line 1-952-583-5735

Sclero Forums Home Join/Shop/Donate Medical News Support Translations Search