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Marina O: Lichen Planus
Subtitle

Straw Hat for Marina by Shelley EnszI am a twenty-seven year old, and about a year ago I went to a dermatologist because I had pus coming from my scalp, and it covered my head. I got a biopsy, they told me I had lichen planus, and that the only solution for me was to apply a strong medication with cortisone base.

So I do not trust doctors anymore, I have visited at least six and each one has given me their own therapy, mostly experimental treatments and none of them really useful.

In the meantime I have a bald patch in my head where hair will not grow again, and the illness is still advancing, without anyone being able to tell me how to stop it.

I am asking you to please help me understand what I can do, and whom to turn to, because I am not so sure that the doctors I have seen so far understand what the illness is really about.

To Contact the Author
Marina
Email: willorba@hotmail.it
Story edited 07-14-09 JTD
Story posted 07-23-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Italian:
Marina O: Lichen Planus
Cos'è la Sclerodermia

English:
Lichen Planus Online Support Group
Lichen Planus Treatments by Mayo Clinic
Medical: Diseases and Symptoms
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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