Marina C: CREST Patient

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Marina C: CREST Patient

Spain

Hello, I am a patient who was diagnosed with CREST five years ago, however I had symptoms for a long time before that. I have telangiectasia all over my body, especially in my face, neck and chest, acute Raynaud's and generalized muscular pain.

Nowadays I only take a hormone treatment, since CREST provoked hypothyroidism.

I am writing to let you know that the Puerta de Hierro Hospital in Madrid, Spain, is trying a new treatment with the molecule P144, in humans, and they believe it can help us with the illness. To know more, go to their web page, or Europa Press, where I read the news. Greetings everyone.

To Contact the Author

Marina
Email: aircorral@yahoo.es
Story edited 04-23-07 JTD
Story posted 06-01-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin

LINKS
(Español) Marina C: Paciente de CREST
English:
CREST Scleroderma
Molecule P144
Muscular Pain
Raynaud's
Raynaud's Patient Stories
Telangiectasia
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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More New Stories: August-November 2009

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