TV Video: Hannah - Health Insurance Story. View her fight for insurance coverage for the SCOT Trial, with David Becker, ISN Assistant News Guide.
Tackle Scleroderma! Join/Shop/Donate
SCLERO.ORG by the nonprofit International Scleroderma Network (ISN) is a full-service nonprofit charitable foundation providing stellar research, support, education and awareness
Search sclero.org:

Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 ;2009
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Lama: Morphea Scleroderma
What if I got one spot on my face or in a place that I cannot hide?

Yellow Flowers for Lama by Shelley Ensz I am an eighteen-year-old girl. It all started last summer when I realized that I had a very small white spot on my back. My mom and I thought it was just dry skin. But later on, the color started changing — it became brownish and it also enlarged.

I had another spot on my right thigh which at first I thought was a bruise. Then I realized that it was not a bruise because it stayed. It became darker and bigger and the skin looks burnt. The only thing annoying about it is the dark color; other than that there are no side effects.

Now I have a tiny similar spot above it and I am sure it is going to enlarge with time. I went to the doctor, who gave me a medicine, but it did not help at all. The doctor also told me that the dark color will not go away and might stay there forever, and that new spots might appear any time.

This thing is scaring me like hell. I am afraid that it will keep on spreading. What if I got one spot on my face or in a place that I cannot hide? I do not know what to do. I cannot wear skirts or go to the beach with my friends because I think it is very ugly and I hate how it looks. But there is nothing I can do.

If anyone reads this, please send me an e-mail and tell me anything you know about morphea. I will be really happy to get an e-mail about this. So far, it is depressing me to think of it. And I cannot imagine it spreading more. I am also afraid it will develop later negative effects. Please tell me if something similar happened to you.

To Contact the Author
Lama
New email address needed.
Old Email Prefix: lama454
Story posted 12-12-00
Story edited 7-9-03
Email note posted 01-19-05 SLE

Story Artist: Shelley Ensz
LINKS
Morphea Scleroderma
Types of Scleroderma
Juvenile Scleroderma
PDF Brochure: What is Scleroderma?
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Lama S: Morphea Scleroderm
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
© Copyright 1998-2009 International Scleroderma Network
All Rights Reserved