| Krisha S: Multiple Autoimmune Condition | ||||||||
| Multiple Sclerosis, Stiff Person Syndrome, Fibromyalgia | ||||||||
In 1995, at the age of thirty-five, I was initially diagnosed with lupus, with an antinuclear antibody (ANA) level of 1:1280. After consulting with lupus specialist Dr. Dan Wallace in Los Angeles and complaining of numbness from the waist down and right body weakness, I was cleared of lupus and told I had chronic fatigue and to go to a neurologist to get a spinal tap. That proved that I clearly had signs of multiple sclerosis (MS) (with protein bands of 3 ogliodendrocyte) as well as fibromyalgia. I was put on cortisone and anti-inflammatories and pain killers. I was single and had to work forty hours a week to pay bills. I had no family support as they believed I was a hypochondriac. I lived with a roommate who ignored me, who worked for the Australian tourism business. After five years of doctor visits, running out of insurance, and earning thirty thousand a year as temp/perm executive secretary, I married a caring man who let me quit working to work on healing myself. My husband, Chris, was very supportive and took me to doctor appointments and helped me discover I had another autoimmune condition, Stiff Person Syndrome. I am taking an array of medications while receiving IVIG (gamma globulin) infusions every two months. I have lost forty pounds and am bedridden. I am searching for a cure for my problem, although I realize it is all a mystery. I have severe leg and arm muscles cramps, joint pain and swelling, migraines, stiffness, trigger point pain, fatigue and have lost a life that was once active, bubbly and happy. I have some type of connective tissue disease but I am not sure which one. I have severe bladder retention, constipation, and no feeling in my feet and hands. If somebody can guide me in a direction that makes sense, I would be grateful. I have five herniated discs in my spine and my neck grows worse every year. I have tried acupuncture, ayurvedic medicine, spiritual healing, and of course western medicine. I have more to say but cannot write anymore, thank you. | ||||||||
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