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Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!
Frog jumping for joy by Shelley EnszPDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.
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Kevin: Undiagnosed Scleroderma, Lupus, Mixed Connective Tissue Disease, Rheumatoid Arthritis, etc.?

No one seems to be able to diagnose what I definitely have.

Red Beech Staggerwing by Sherrill Knaggs, ISN Artist I have been suffering from whatever it is I have since December of 2000. No one seems to be able to diagnose what I definitely have. I suffer from joint swelling, fatigue, uncontrollable sweating, Raynaud's, constant pain, etc.

My Raynaud's took a turn for the worse in September, and since then I have had two sympathectomies to try to save my fingers. My middle finger has not improved much, and I may still lose the tip of it or more. Has anyone had similar trouble with Raynaud's?

All I do is live, sleep and breathe the pain in my hand. No matter what medications the doctors give me, nothing seems to be able to control the pain, and they do not seem to want to give me anything stronger. I do not want to live on pain pills. I just want to get this over with and go on with my life, but right now I cannot because of the pain.

Also, I soak the pillow every night when I sleep. Is there anyone out there who has this problem? I have not been able to find an answer from any of the many doctors I have been to (which is another story in itself of the wonderful, compassionate doctors I have been to - HA!).

At first I thought it might have been different medications that caused the sweating, but stopping the medications has not seemed to help. Can somebody please just help me? Thank you.

To Contact the Author
Kevin
Email: chestypuller61@yahoo.com
Story edited 12-29-04
Story posted 1-3-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Difficult Diagnosis
MCTD/Overlap Syndrome
Raynaud's
Rheumatoid Arthritis
What is Scleroderma?
PDF Brochure: What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
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