[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Katia C: Sister of a Scleroderma Patient

Italy

Pink Rose and Butterflies by Shelley EnszI am the sister of a diffuse scleroderma patient. She is forty-two years old. A year and a half ago she was diagnosed with Raynaud's. Due to this she had a scleroderma related renal crisis which made her blood pressure higher and she developed ischemia.

Now she is recovering at the hospital, after a scleroderma related renal insufficiency. She is in the acute phase of the illness, and she has a hardened skin, third degree, that has affected her hands, arms, chest and legs. Now she is hospitalized because her illness has taken her kidneys and she is at risk of dialysis and cutaneous hardening in the third degree.

To Contact the Author

Katia
Email: manuel67_2@libero.it
Story edited 07-14-09 JTD
Story posted 07-18-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Italian:
Katia: Sclerodermia Diffusa
Cos'è la Sclerodermia
Raynaud
Raynaud Storie di Pazienti

English:
Caregiver Resources
Caregiver Stories
Diffuse Scleroderma
Diffuse Scleroderma Stories
Kidney (Renal) Involvement
Kidney Involvement Stories
Raynaud's
Raynaud's Stories
Sclerodactyly
Sclerodactyly Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

New Personal Stories

We are revising our personal story submission program. If you would like to post or update an existing story on our site, please email isn@sclero.org.
Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
 
Go to Katie: Morphea
 
 

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

The most important thing in the world to know about scleroderma...is sclero.org!
Home   Medical  News  Sclero Forums  Support  Translations  Donate or Shop
Copyright 1998-2015, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.