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Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!
Frog jumping for joy by Shelley EnszPDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.
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Julian: Morphea

Spanish

Purple Cineraria by Sherrill Knaggs, ISN Artist My name is Julián, I am twenty-one years old. About thirteen years ago I got a little white spot in my thigh (coin-like). I thought it was some sort of fungus, so I went to the doctor and got it analyzed, but nothing showed up.

When I was eighteen I saw that the spot had turned reddish and the veins started showing, and it had grown. I went to a dermatologist, and was diagnosed with morphea.

I began searching for information and learned that it is a chronic ailment, so it doesn't have a cure, but it can get better under treatment. In my treatment I have taken several medications and creams.

I was also tested for Borellia and this was negative, hemograms were normal.

I have spots on my left thigh, a small one on my right armpit, and two diffuse ones on my back and the back of my left foot. Although this illness is a bit unpleasant to the eye, I am not in pain at all, I feel very well, I have no problems asociated to it, and I have so far lead a very normal life.

There are people who are very close to me and they don't even know I suffer from morphea. So keep going, I am sure we can survive it.

To Contact the Author

Julian
Email: Withheld by Request
Story edited 03-12-07 JTD
Story posted 04-13-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin

LINKS
(Español) Julian: Morfea
ENGLISH
Morphea
Morphea Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
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Go to Julie: Morphea Scleroderma
 
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