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Judy C: Mother of Daughter with Linear Morphea Scleroderma
My daughter, who is eight years old,
has really done well with the medications and the whole diagnosis.

Cactus Flowers for Alison by Sherrill Knaggs, ISN Artist My name is Judy. I am married and the mother of four children. Three months ago, our oldest daughter, Alison, was diagnosed with linear morphea scleroderma (Juvenile Scleroderma).

Over the wintertime we noticed a large bruise like mark over the lower part of her right buttock. She also had various patches that went down her right leg. They are ivory colored patches surrounded by a darker border.

We had gone to an adult dermatologist and he diagnosed her as having something completely different. I scheduled an appointment with the pediatric dermatologist who immediately knew what it was by looking at it. It was biopsied and shown to be Linear Morphea Scleroderma with a lot of inflammation.

We also had ANA and DNA titres drawn and they came back negative. Our course of therapy has been a topical ointment called Protopic, an immuno-suppressant, and Plaquenil, an anti-inflammatory, twice a day.

My daughter, who is eight years old, has really done well with the medications and the whole diagnosis. We have been to an orthopedist for a baseline check of her symmetry and right now everything seems to be okay with her growth. We were told that if we can get her through her growth spurt with good growth she should do just fine.

I would like to know if anyone has taken these medications and what their success has been. If we see no improvement with these medications, I believe the next step is the Methotrexate.

I would love to hear from you.

To Contact the Author
Judy
New email address needed.
Old Email Prefix: djcowell
Story edited 10-24-02 SLE
Story posted 11-03-02 SLE
New email address needed 08-03-09 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Saba Sadiq
LINKS
ANA
Juvenile Scleroderma
Linear Scleroderma
Morphea Scleroderma
Scleroderma
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Saba Sadiq
Saba SadiqSaba Sadiq is the ISN Story Editor for this story.
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Judy Dee: Diffuse Scleroderma
 
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