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John G: Raynaud's?
Even in the slightest cold weather I lose the ability
to use my hands and it has made it very difficult to function.

Clouds Afire for John G. by Sherrill Knaggs, ISN Artist I am a heavy equipment mechanic by trade and come in contact with cold steel on a daily basis. I thought the cold steel was the problem but it is not. If I walk out to the mailbox across the front lawn for just a few seconds, my hands turn a greenish white color and become numb.

The cold only affects my hands and feet. Even in the slightest cold weather I lose the ability to use my hands and it has made it very difficult to function.

I am forty-five and this has been getting worse as the years go by. My doctor tells me to keep warm while I wonder if something else is wrong and he does not tell me.

I have learned to live with this and thought I was the only person with this problem. Even with gloves on I cannot stay out in the cold for long. I am in very good shape otherwise. I exercise daily, do not smoke and have a good diet. Other than keeping warm as the doctor told me to do, which is impossible at my job, I do not know what else to do.

When we experience snow storms I have to work outside. When there are breakdowns of the equipment I have to work outside. My boss thinks I am making excuses. It is hard to convince people who do not have this problem that it is real and has an effect on people.

Thank you for this web site. It is of great value.

To Contact the Author
John
New email address needed 09-26-06 SLE
Old Email Prefix: givenjr
Story submitted:11-23-02
Story posted: 11-25-02

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith R. Thompson
Story Webmaster: Judith R. Thompson
LINKS
Raynaud's
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Johnny: CREST Scleroderma
 
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