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Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!
Frog jumping for joy by Shelley EnszPDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.
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John G: Raynaud's?

Even in the slightest cold weather I lose the ability
to use my hands and it has made it very difficult to function.

Clouds Afire for John G. by Sherrill Knaggs, ISN Artist I am a heavy equipment mechanic by trade and come in contact with cold steel on a daily basis. I thought the cold steel was the problem but it is not. If I walk out to the mailbox across the front lawn for just a few seconds, my hands turn a greenish white color and become numb.

The cold only affects my hands and feet. Even in the slightest cold weather I lose the ability to use my hands and it has made it very difficult to function.

I am forty-five and this has been getting worse as the years go by. My doctor tells me to keep warm while I wonder if something else is wrong and he does not tell me.

I have learned to live with this and thought I was the only person with this problem. Even with gloves on I cannot stay out in the cold for long. I am in very good shape otherwise. I exercise daily, do not smoke and have a good diet. Other than keeping warm as the doctor told me to do, which is impossible at my job, I do not know what else to do.

When we experience snow storms I have to work outside. When there are breakdowns of the equipment I have to work outside. My boss thinks I am making excuses. It is hard to convince people who do not have this problem that it is real and has an effect on people.

Thank you for this web site. It is of great value.

To Contact the Author
John
New email address needed 09-26-06 SLE
Old Email Prefix: givenjr
Story submitted:11-23-02
Story posted: 11-25-02

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith R. Thompson
Story Webmaster: Judith R. Thompson
LINKS
Raynaud's
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
New Personal Stories
Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
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