TV Video: Hannah - Health Insurance Story. View her fight for insurance coverage for the SCOT Trial, with David Becker, ISN Assistant News Guide.
Tackle Scleroderma! Join/Shop/Donate
SCLERO.ORG by the nonprofit International Scleroderma Network (ISN) is a full-service nonprofit charitable foundation providing stellar research, support, education and awareness
Search sclero.org:

Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 ;2009
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Gina: Morphea or Linear Scleroderma
I kind of wondered about it for a year.

Parrot Toys by Shelley Ensz My story starts eight years ago when I was twenty-three years old and about eight months pregnant with my second child. I noticed some skin pigmentation changes on the back of my left leg. I put it off thinking it had something to do with my pregnancy.

I kind of wondered about it for a year. I went in for a yearly check-up and showed my doctor. He immediately was concerned and took blood tests and a biopsy. Well my blood test came back with a highly positive ANA test (380). From there I was sent to rheumatologists and dermatologists. Some diagnosed me with linear scleroderma and some with morphea.

The last doctor I saw told me that unless I was having any problems I really did not need to see him again. Well, not only did the whole back of my left leg turn hard and purple, but my left ankle and foot are also affected. My abdomen is covered, the sides of my breasts and upper rib cage (on the side). My upper arms are showing spots. The front of my left leg is covered.

At times I really try to put it out of my mind and be thankful that it is not systemic. But, every time I notice new areas turning color it really worries me. I have also noticed when those new areas appear I am extremely tired and experience bouts of vertigo.

I do not know if it's at all connected. I just wanted to reach out and see if anyone had any words of wisdom for me. Thanks.

To Contact the Author
Gina
New email address needed.
Old Email Prefix: coate
Story posted 8-26-01
New email address needed 8-31-03

Story Artist: Shelley Ensz
LINKS
Linear Scleroderma
Morphea Scleroderma
Pregnancy and Scleroderma
Types of Scleroderma
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Ginger: Generalized/Linear Scleroderma
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
© Copyright 1998-2009 International Scleroderma Network
All Rights Reserved