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(English) Flora: Systemic Scleroderma
with Bronchial Allergic Asthma
(Italiano) Flora: Scleroderma Sistemica con asma allergico bronchiale

Rose for Flora by Shelley Ensz I am a young woman, age twenty-three, and in August of 1999, I was admitted to Saint Anna Hospital in Ferrara and diagnosed with systemic sclerosis.

I have also suffered from allergic asthma for around twenty years. At the moment, I have cyanosis of the hands with blue fingers and loss of strength. My breathing is currently under control. I must say, first of all, that before arriving at this diagnosis, I consulted many doctors at great expense and without satisfactory results.

I would like to understand much better the various aspects of my disease and the damage that it could cause me in order to answer my doubts, such as, will I be able to live a normal life?

I want to encourage all the people who suffer from scleroderma like me so that they manage to beat this disease. Thank you for this space that was given to me to tell of my experiences and talk about my disease.

To Contact the Author
Flora
New email needed 12-20-06 SLE

Old Email: indevas@libero.it
Story posted 11-27-99 SLE
Story edited 3-25-02 SLE
Story Edited 7-28-03 JTD/V1

Story Translator: Kevin Howell
English translation posted 6-18-02
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
LINKS
Difficult Diagnosis
(Italiano) Flora: Scleroderma Sistemica con asma allergico bronchiale
(Italiano) Sclerodermia dalla A alla Z
(English) Raynaud's (blue fingers)
(Italiano) Raynaud's
(English) Systemic Sclerosis
(English) Systemic Sclerosis
This Story is Featured in Voices of Scleroderma Volume 1
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
ISN Translator: Kevin Howell
Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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