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Donna D: Systemic Scleroderma
No one shares a timeline with me or will tell me what to expect next.

Peach Blossom 3 by Sherrill Knaggs, ISN Artist I am a 59 year old female and I was diagnosed with systemic scleroderma three months ago.

At this time the problems are mostly skin related, with hardening and lesions. I am tired a lot and am in pain under my arms. The back of my knees are so hard that I have difficulty bending. I am frequently chilled.

I'm just beginning to have difficulty swallowing and have pain in my kidney area. I am taking Minocycline 100 mg. twice a day. It has helped my skin to soften and the lesions to start shrinking.

My legs do not straighten out in bed at night due to swelling in the groin area and tightening of the skin. I seem to be puffy. I do not have the typical involvement in my hands and it took months and many tests to diagnose my case.

No one shares a timeline with me or will tell me what to expect next. I am trying to just enjoy each new day and attack each new symptom as it comes about.

To Contact the Author
Donna D.
New email needed 09-26-06 SLE
Old Email: ARTDAWM@prodigy.net
Story submitted 6-20-02
Story posted 7-11-02
LINKS
Difficult Diagnosis
Dysphagia (Difficulty Swallowing)
Reflux
Scleroderma
Skin Fibrosis (hardening)
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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