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Del: Deaf with Systemic Scleroderma
I hope and wish to meet others who are deaf with scleroderma.

For Del by Shelley Ensz I am deaf with scleroderma and I have had systemic scleroderma for ten years. I sign ASL (American Sign Language.)

I do not know if there are any others who are deaf with scleroderma, and I have not seen nor met anyone else who is deaf with scleroderma, even though I have been to several scleroderma conferences in the past years, including the 1999 conference in San Diego.

It is my hope and wish to meet others who are deaf with scleroderma. Is anyone else out there like me? May I hear from you real soon? Please email me. :-)

Thank you very much.
To Contact the Author

Del
New email address needed.
Old Email Prefix: del63al
Posted 10-24-99
Story edited 8-17-03 SLE
Email notice posted 8-17-03
Story Artist: Shelley Ensz

 LINKS
Systemic Scleroderma
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Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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