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Debra K: Daughter of Scleroderma Patient
I wish that there was something I could give to her from my healthy body.

Rubber Plant by Sherrill Knaggs, ISN ArtistIt is heartbreaking to see the pain my mom suffers from this painful disease.I pray everyday that a cure comes.I wish that there was something I could give to her from my healthy body. If I could, I would do it in a heart-beat.

This terrible scleroderma disease started with eating problems.It then proceeded into circulation problems, with cold hands and feet.Her hands that would turn purple because of being so cold. Then years later, and as of today,she suffers from painful ulcers on her hands, fingers, legs, and feet.They have taken years and years to heal.They are still in the process of healing.

She was hospitalized. She was also in a wheelchair due to the excessive pain of the ulcers in her legs and feet.She had a homecare nurse for a couple of years.Now her ulcers are healing, but when one goes away,she gets another.Her pain is terrible.

She is such a trooper, though.She pushes onward and acts as if she is in no pain at all.But, her family knows better.

She is my hero. I wish for a cure every day.My biggest Christmas wish is not for presents, but for her to be all better.

To all that suffer from this, my heart goes out to you. You have strengthbigger than the world.

To Contact the Author
Debra
Email:kramtiff@hotmail.com
Story submitted: 12-03-02
Story posted: 01-01-03

Story Editor: Judith R. Thompson
ISN Senior Artist: Sherrill Knaggs
LINKS
Circulation
Scleroderma
Ulcers
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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