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Christina N: CREST Scleroderma
Ireland

Daffodils for Christina by Sherrill Knaggs, ISN Artist Hi, my name is Christina and I am thirty-six years old. My story is about my struggle with every day life. I have two children, a boy age fifteen and a girl age ten. They are the main focus in my life, as well as James, my partner, whom I love very much.

About three years ago I was diagnosed with Raynaud's and CREST. Then the doctor told me I only had Raynaud's. Two years later I was told I have Scleroderma with CREST and arthritis.

My daily life is a strain on my family, but they never complain. Not once have they moaned to me about the changes we have had to make. My local doctor is very good to us in every possible way, but the main doctor that I see in the hospital every six months is hopeless. She thinks she knows all there is to know about me, but not once has she asked me if I was okay. She makes me feel like she just wants to let me know that she is the top doctor and I am a nothing.

In March of this year I went for my regular checkup and this time I saw a different doctor who listened to everything I had to say. After an hour or so she had to see her boss. After a while they both came back to see me and told me I had the onset of CREST. I was dumbfounded by that.

I never got to thank the young lady who went out of her way to see that I got sorted out. And I still have no real information except for what I have learned on the Internet.

Every day I struggle to cope with my body wanting to do its own thing and knowing that it cannot. It is a lot to take. But I am trying every day. I try but then I find something else I cannot do, but I am not giving up and I hope I never will. God bless you all.

To Contact the Author
Christina
New email address needed 08-06-09 SLE
Old Email Prefix: noonanchristina
Story edited 09-24-04
Story posted 09-28-04 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
CREST
Raynaud's Stories
Types of Scleroderma
What is Raynaud's?
What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Christene: Limited Scleroderma
 
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