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Cathy B: Spouse of Scleroderma Patient
It was very devastating news.

Flowers for Cathy by Shelley Ensz My husband, who is fifty-two years old, was diagnosed with scleroderma in September 2000. Of course, it was quite a shock to hear what it actually was, but we had known something was wrong for several years because of the different symptoms he experienced.

I am thirty-seven years old and we are both confused about everything being thrown at us. I am trying to stay positive, but my husband is very pessimistic.

~ Update August 2002 ~

Things are much better now. We have gotten through the last two years with all the support we have received from everyone on this website.

The first year was the worst physically for my husband. He was on many different medications, and between the effects of the medications and the emotional strain, it was overpowering. Thankfully, my husband reacted positively to the medication and has been stable for eight months now.

I would love to hear from other spouses who would like to share their story. We are all here to support each other and get through this hard-to-understand disease together.

Thanks again to the SCLERO.ORG site for all the support and encouraging information you provide. Take care to all of you and god bless.

To Contact the Author
Cathy B.
Tabcat93@aol.com
Story posted 1-03-01
Story update 8-20-02
Vol. 2 matching edits 01-04-05 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
LINKS
What is Scleroderma?
Scleroderma Email Support Lists

This story is featured in the book Voices of Scleroderma Volume 2
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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