Over 2,200+ pages in 22 languages!
 
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
B. A. McKinny: Mother of Atrophoderma of Pierini and Pasini Patient
Atrophoderma of Pasini and Pierini (APP) is similar to Morphea Scleroderma. Some doctors think it represents a late-stage Morphea.

Wildflowers at the Cabin by Shelley Ensz My seventeen year old daughter was told she had Atrophoderma of Pierini and Pasini (APP) last year. She has had bruise-like spots for about eight or nine years.

Our family doctor just said it was thin skin. We were told by the third dermatologist that it was APP, a form of morphea.

They say there is nothing we can do. She has these plaques all over her arms, back and legs. For a teenager this is horrible, you can imagine. The doctor gave her an ointment, Dovonex, but it really does not help. Any one else have this?

To Contact the Author
B.A. McKinny
Email: shopbeth@aol.com
Story posted 1-26-02
More links added 05-28-05 SLE

Story Artist: Shelley Ensz
Atrophoderma of Pierini and Pasini
Juvenile Scleroderma
Morphea
Types of Scleroderma
What is Scleroderma?
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Babi: My Boyfriend has Scleroderma
Contact ISN. We are a full-service nonprofit agency.
Email: isn@sclero.org or
Post in Sclero Forums!
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S.
1-800-564-7099
Direct Line
1-952-831-3091 (U.S.)
(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved