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Stories in English: B

B. A. McKinny: Mother of Atrophoderma of Pierini and Pasini Patient My 17 year old daughter was told she had Atrophoderma of Pierini and Pasini (APP) last year...
Babi: My Boyfriend has Scleroderma (Italy) He has to go to the hospital for at least four days and get a sort of chemotherapy...
Barb: Diffuse Systemic Scleroderma I was diagnosed in 1985 with systemic scleroderma and Raynaud's. It has affected my esophagus, fingers, toes and bowels, and recently I started having mini strokes...
Barbara H: Generalized Essential Telangiectasia About five years ago some specialists at St, Vincents Hospital had a symposium and I was one of the subjects but they did not have anything to assist me. Laser could help but was very expensive...
Barbs: Systemic Sclerosis, CREST, Raynaud's So from the outset, diagnosis took 20 years...
B.C.: Surviving Daughter of Pulmonary Fibrosis Patient Immediately after the diagnosis my father started to go downhill...
Becky: Morphea and Fibromyalgia The muscle in my forearm has already atrophied, and it has only been four weeks...
Becky H: CREST Scleroderma I am interested in becoming a pen pal with someone so that we can be supportive to each other as changes occur and compare notes...
Becky S: Morphea Scleroderma I worry that if the morphea spreads to my face I would not be strong enough to cope with it...
Bernarda: Mother of a Localized Morphea en Coup de Sabre Patient She still is not fully conscious of what is happening, while I am devastated...
Beryl: Primary Sjogren's Syndrome I was diagnosed a year ago through an eye biopsy as I was having trouble with blurred vision. However, my main problem is with the dry mouth...
Beth: Morphea Scleroderma It is nice to hear familiar stories. I do not feel like such a freak. My dad used to tell me I could join the circus and be a side show as the spotted girl...
Beth R: Eosinophilic Fasciitis My arms and legs are still tight and I still cannot make a fist...
Betty Fults: CREST Scleroderma I would like to talk with someone that has feeding tubes also. Maybe that will help me...
Betty M: CREST Syndrome I was in so much pain for so long that I tried to take my own life. This only ended me up in a mental institution where I was given shock treatments that wiped out my whole memory...
Betty W: Morphea That was in 1984. Twenty-two years later I am fine except for some ugly spots on these places...
Beverly: CREST Scleroderma I was overtired and needed naps in the afternoon, pain was slowly getting the better of me and I finally went to the doctor...
Bill: Diffuse Scleroderma I was relieved to have a label for my condition but the doctor was not very reassuring telling me that there was no effective cure or treatment...
Bill B: En Coup de Sabre It is now getting near my eyebrow. I am a bit concerned it may begin to encroach on my eye and I am not sure what will happen...
Bill Jordan: Surviving Boyfriend of Scleroderma Patient Wendy was heartset on dancing that evening even though she was connected to an oxygen machine...
Bill M: Localized Scleroderma All I want to say is that your life will go on. Do what makes you happy: pray, fish, ride motorcycles, whatever...
Bill T: Diffuse Scleroderma I was diagnosed in July 2008 with Diffuse Scleroderma. I have consistently digressed since then, and have now been in my handicapped recliner, for the most part, since about July 2009...
Billy N: CREST/Scleroderma and Raynaud's I am a private person and prefer to keep it that way, but the public needs to know that too many 'Invisible Americans' are being treated poorly...
Birilla: CREST and Bilateral Thoracic Outlet Syndrome It all began in 1998, I was 32 years old. Two of my fingers turned white...
Blanca: Morphea It has been very painful emotionally watching it just takes over my body with no recourse to find a cure...
Bob: Pulmonary Fibrosis I have learned that you can fight Pulmonary Fibrosis and you do not have to give up all the activities you once enjoyed...
Bobbie Thrasher: Scleroderma I may write a book about my childhood since I am blessed to use my fingers once again...
Boo: CREST Scleroderma Finally in 1994, it was labeled as CREST syndrome, which is a form of systemic scleroderma...
Bree: My Father Died from Aspiration Pneumonia I do not fully understand how or why this form of disease would cause a person to die...
Bregan: Mother of Daughter with Morphea (New Zealand) My fourth child, who is now seven years old, has just been diagnosed with Morphea...
Brenda: Limited Scleroderma, CREST, Raynaud's I was sick for five or six years, telling doctors how much pain I was in...
Brenda F: Scleroderma and Cystic Fibrosis Trying to hide it from my friends so I would not seem different has been hard...
Brenda K: Morphea Scleroderma I was diagnosed with Morphea Scleroderma about twelve years ago. It started with a dark linear mark on my lower back...
Brenda M: Primary Biliary Cirrhosis (PBC), Fibromyalgia, Pulmonary Fibrosis, and Sjogren's Syndrome In 1965, when I was twenty-six, I went to work for a firm of electro-platers, which was mainly aircraft work...
Bri: Morphea Scleroderma I am currently waiting to have plastic surgery. They are going to do reverse liposuction; taking some fat and tissue from my left leg and then inject it into my right leg...
Brian D. Jessop: Scleroderma I am a Vietnam Vet from 1968 to 1970. I am from the Agent Orange time on the Saigon River and the Macon Delta Rivers...
Brianne: Surviving Daughter of Scleroderma Patient I think I was eleven when my dad had to go to Edmonton, Canada, for tests...
Brittney: Morphea My daddy tells me all the time that a man will fall in love with me for me and my skin will not even be a factor...
Brother Alan: Systemic Scleroderma I was diagnosed with Scleroderma three years ago and "too many times ten" doctors later, here I am...
Buggzy: Autoimmune Hepatitis, Fibromyalgia, Undiagnosed I am really desperate to get some answers or to hear from others in the same boat as me...
Bwana: Keloids The keloids have spread all over my face, back, chest, arms and legs...
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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