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Angela O: CREST

I fought this disease with every ounce of strength I had.

Mountain Range with Path and Trees by Ione Bridgman, ISN ArtistI am seventy-two years old now and became ill with CREST syndrome when I was forty-six years old.

I fought this disease with every ounce of strength I had. I became a nurse when my children were older teens and my husband was a policeman.

Now, the calcinosis is so bad on my fingers, that I find ordinary chores harder and harder. While my rheumatologist tries to help, she said there is very little she can do and sometimes, I need pain medication.

I feel lost.This disease is hardly ever advertised as so little is known about it.

To those of you who suffer with it, you are not alone.

To Contact the Author
Angela
New email address needed 08-06-09 SLE
Old Email Prefix: iniof2
Story edited 01-16-09 JTD
Story posted 01-21-09 SLE

Story Artist: Ione Bridgman
Story Editor: Judith Thompson Devlin
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ISN Artist: Ione Bridgman
Ione Bridgman ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our  Voices of Scleroderma Book Series .
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Angela S: Overlap Syndrome
 
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