[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Anastasia: Surviving Granddaughter of a Diffuse Scleroderma Patient

Bye Bye GiaGia

Antiques Photo by Shelley EnszJust last February my grandmother who never seemed to get sick was brought to the hospital. I remember her constantly tired and her small body was always in pain. She suddenly could not walk. That was the beginning of a long fight with my dear grandmama.

We went everywhere to figure out what she had but no one knew. Traveling to a different hospital finally we heard scleroderma. Honestly I would never heard of this disease. I thought that she would get treatment and come back home. Though, little did I know, that my life as well as the rest of my family's would change forever.

She immediately had kidney and heart problems, and she was fed by a tube in her stomach. We all had hope, and the doctors assured us she would live but that it would be a hard life for her. I knew that she could never get back to the way she was, healthy.

Sad to say that my grandmother died nine months after they diagnosed her. My question is if she might have had this disease many years ago since she died so fast? Was this just the last stage? It progressed so fast. Are there many cases like this?

Thank you for listening.

Bye Bye GiaGia.

To Contact The Author

Anastasia
New email address needed 09-06-06 SLE
Old Email Prefix: GrkACE
Posted 10-24-99 SLE
LINKS
Diffuse Scleroderma
Heart Involvement
Kidney Involvement
Survivor's Stories
Tubal Feeding
What is Scleroderma?
 

New Personal Stories

We are revising our personal story submission program. If you would like to post or update an existing story on our site, please email isn@sclero.org.
Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
 
Go to Andie Friend: Morphea
 

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. Donate or Shop Now.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

The most important thing in the world to know about scleroderma...is sclero.org!
Home   Medical  News  Sclero Forums  Support  Translations  Donate or Shop
Copyright 1998-2015, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.