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Ana Lucia: Diffuse Scleroderma
I want to tell everyone who has something
similar that you shouldn't give up, you should go ahead, life is beautiful.
Yellow Canna by Sherrill Knaggs, ISN Artist

Hello, my name is Ana Lucía. I am twenty years old and I was diagnosed with diffuse systemic scleroderma a year and a half ago. I have been on a treatment with corticosteroids and cyclophosphamide for roughly the same amount of time.

I have to go to the hospital every month for an IV treatment. Thank God everything is better now, it is under control. Perhaps, if it is God's wish, by the end of the year I won't have to do the IV treatment anymore, but I will have to keep on taking pills. But I want to tell everyone who has something similar that you shouldn't give up, you should go ahead, life is beautiful.

Thanks for listening.

To Contact the Author
Ana Lucia
Email: Withheld by request
Story edited 03-01-06 AL
Story prepared 03-01-06 JTD
Story posted 05-02-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Story Translator: Alba León
LINKS
(Español/Spanish) Ana Lucia: Esclerosis Difusa

(Español) Esclerosis Sistemica Difusa

(English) Diffuse Scleroderma
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series !
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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