TV Video: Hannah - Health Insurance Story. View her fight for insurance coverage for the SCOT Trial, with David Becker, ISN Assistant News Guide.
Tackle Scleroderma! Join/Shop/Donate
SCLERO.ORG by the nonprofit International Scleroderma Network (ISN) is a full-service nonprofit charitable foundation providing stellar research, support, education and awareness
Search sclero.org:

Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 ;2009
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Alex U: Swollen Salivary Gland
Italy

Orange Vase by Shelley EnszWhen I eat I get very tired, because I have very little salivation. I think I have problems on my left salivary gland since it is swollen compared to the other. I went to specialists and they told me that it is longer, but not much else. I think I always have the problem, but when I eat I cannot do much because of this longer and swollen gland. I have spent many months with the swelling on the left side of my face, even my ears, and I think I am developing osteoarthritis.

I sing, I am a tenor, when my health allows it. So I haven’t been able to work for three years. I have also had problems with my teeth, which I have tried to take care of. I am less swollen now, but I still have the salivation problem. What will happen to my stomach? Isn’t this gland a danger? I think that for singing it is necessary to have good salivation. I floss regularly, prefer soups and salads, and I use a lot of yoghurt. It could be xerostomia.

I also have a nasal deviation, and I always have a cold. The weather in Italy, surrounded by the sea, is not made for me. I also have reflux. I am asking for help because I have been to several doctors. Now I live in Lignano Sabbiadoro, but I was much better in Tuscany, where I was before, I have now understood that I was ok in the Tuscan Apennines, but there’s nothing I can do now.

Thank you.

To Contact the Author
Alex
Email: alextenore@libero.it
Story edited 07-14-09 JTD
Story posted 07-24-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Italiano:
Alex U: Ghindola Salivare Allungata
Sindrome di Sjogren

English:
Difficult Diagnosis
Difficult Diagnosis Stories
Sjogren's Syndrome
Sjogren's Stories
Medical: Diseases and Symptoms
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Alexandra: Scleroderma
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
© Copyright 1998-2009 International Scleroderma Network
All Rights Reserved