| Stories by Month Posted |
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2009: Jan-Feb Mar-Apr May Jun Jul Aug-Nov 2008: Jan Feb-Sep Oct Nov-Dec 2007: Jan-May Jun Jul Aug Sep Oct-Dec 2006: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov-Dec 2005: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2004: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2003: Jan -Apr May Jun Jul Aug Sep Oct Nov Dec 2002: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2001, 2000, 1999 |
| August-November 2009 |
| Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end... |
| (Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia... |
| (Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was... |
| Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information... |
| Bill T: Diffuse Scleroderma I was diagnosed in July 2008 with Diffuse Scleroderma. I have consistently digressed since then, and have now been in my handicapped recliner, for the most part, since about July 2009... |
| Maritere: Mother of Daughter with Morphea It might have been just a regular bruise, but instead of swelling, the skin began to sink, perhaps just milimeters but it was sinking... |
| (Español/Spanish) Maritere: Madre de una niña Morfea (Mexico) Hubiera pasado por un golpe, pero en vez de inflamarse, se empezó a deprimir, quizá sólo milímetros, pero estaba hundida... |
| Morun: Morphea (Italy) I am a twenty-two year old guy, and I have had morphea for two years... |
| (Italiano) Morun: Morphea (Italia) Sono un ragazzo di 22 anni, e sono 2 anni che ho la morphea... |
| Dee B: Limited Scleroderma/CREST Syndrome I also had the problem with people saying I was a hypochondriac, as at that stage all the doctors I saw found nothing wrong with me, but I constantly felt weary and ill... |
| Alexandra: Scleroderma My scleroderma symptoms arrived in great style: reflux, itchy swollen skin, joint and muscle pain and tiredness. Plus hundreds of little red spots (telangiectasia). My mouth was tight and getting smaller too... |
| Rosú: Sjogren's Syndrome and Hashimoto's Thyroiditis (Italy) Sjogren's causes periferic polyneuropathy, with pain and loss of sensibility in my right hand and arm... |
| (Italiano) Rosú: Sindrome di Sjogren e Tiroidite da Hashimoto (Italia) La Sjogren mi causa polineuropatia periferica con dolore é perdita di sensibilitá alla mano e braccio destro... |
| (Update) Kristen: Diffuse Scleroderma Well, I made it through the winter, but barely. I went into the hospital with chest pains and trouble breathing... |