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May 2009
Ila: Localized Scleroderma En Coup de Sabre (Italy) It seems as if the illness has stopped, or to put it in a different way "calcified", like they told me in my last doctor's appointment...
(Update) Dorothy: Scleroderma CREST This is my 39th year with scleroderma so there is not much I do not know about it...
(Update) Kaycee: Diffuse Scleroderma, Polymyositis, Fibromyalgia, and Diabetes I was hospitalized for four days over Easter with what they called right-sided facial cellulitis...
Jenny H: Eosinophilic Fasciitis My legs started changing appearance to a mottled red and white color, and looked like they were made of plastic...
Paolina F: Essential Telangiectasia It initially started on my feet and has progressed to most of my legs, arms, and I have some spots on my torso...
New Personal Stories
Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
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Go to New Patient Stories: January 2009
 
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