| Stories by Month Posted |
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2009: Jan-Feb Mar-Apr May Jun Jul Aug-Nov 2008: Jan Feb-Sep Oct Nov-Dec 2007: Jan-May Jun Jul Aug Sep Oct-Dec 2006: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov-Dec 2005: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2004: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2003: Jan -Apr May Jun Jul Aug Sep Oct Nov Dec 2002: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2001, 2000, 1999 |
| January-February 2009 |
| Janet Q: UTCD or MCTD I also experienced new symptoms; joint pain, muscle aches, headaches, very painful carpal tunnel syndrome in both hands, back and neck pain, the list grew on and on... |
| Suzy G: GAVE (Watermelon Stomach) and Primary Biliary Cirrhosis Just over six years ago I was diagnosed with primary biliary cirrhosis (PBC), a liver disease. Since then everything else seems to be happening to my body... |
| Angela O: CREST Now, the calcinosis is so bad on my fingers, that I find ordinary chores harder and harder... |
| Chela: Diffuse Scleroderma My facial expression changed a lot, but this went unnoticed to the people that do not know me very well... |
| (Español/Spanish) Chela: Esclerodermia Difusa Fue terrible para mí; las facciones de mi cara cambiaron mucho, pero sin ser notorio para las personas que no me conocen... |
| Vali: Mother of Linear Scleroderma Patient (Italy) A dermatologist diagnosed her with Linear Scleroderma, but another one said it was Linear Lichen Planus. My daughter's feet, when she walks, turn inside, and she is often warm, but doesn't have a fever... |
| (Italiano) Vali: Sclerodermia Lineare (Italia) Un dermatologo a diagnosticato una Sclerodermia Lineare. Un'altro invece: -Lichen Planus Lineare. Mia figlia ha i piedi che quando cammina li butta in dentro, e si sente spesso accaldata ma febbre non ne ha... |
| Sbirulino: Limited Systemic Sclerosis, First Stage Biliary Cirrhosis (Italy) They diagnosed Raynaud's Syndrome, until there was amputation of the first and second phalanges, which caused total invalidism... |
| (Italiano) Sbirulino: Sclerosi Sistemica variante Limitata, Cirrosi Biliare Primitiva (Italia) Mi avevano diagnosticato la sindrome di Reynaud, fino all'autoamputazione delle Ie e IIe falangi arrivando a portarmi ad una invalidità totale del 100%... |
| Alda: Raynaud's Syndrome (Italy) Fortunately I am going through menopause and I am having hot flashes. But in between hot flashes I feel like I'll die from the cold... |
| (Italiano) Alda: Sindrome di Raynaud (Italia) Per fortuma che vivo il periodo della menopausa ed ho anche le vampate. Ma tra una vampata e l'altra muoio di freddo... |
| Peggy: CREST and Raynaud's Years later, at fifty-six, my family doc said he thought I had scleroderma because I was having trouble with my hands, and my fingers looked like sausages... |
| Eli: Sclerodermia and Raynaud's Syndrome (Italy) After thirteen years of suffering, he has given me a diagnosis and a cure, before it is too late, I hope... |
| (Italiano) Eli: Sclerodermia e Sindrome di Raynaud (Italia) Finalmente dopo 13 anni di sofferenza ho diritto anche io a una diagnosi e una cura,prima che sia troppo tardi. Spero... |
| Hamza: Linear Scleroderma I would really like to know whether there are any athletes who overcame severe linear scleroderma in their leg... |
| Mariam: CREST I am feeling very low at the moment as after seven years of dealing with all the changes, and trying to carry on as normal, I feel like I have lost... |
| Jose C: Linear or Morphea Scleroderma? The spot I have is causing muscular atrophy and loss of strength... |
| (Español/Spanish)Jose G: Esclerodermia Lineal o Morfea La mancha me está provocando atrofia muscular y pérdida de fuerza... |
| Sandra C: Morphea A few months ago I began a special treatment with UVA 1 photo therapy and my condition has improved considerably... |
| (Español/Spanish) Sandra C: Morfea Desde hace algunos meses empecé un tratamiento especial con fototerapia uva 1, y he tenido gran mejoría... |