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| October 2008 |
| Nina: Fibromyalgia, Raynaud's, Limited Scleroderma/CREST That is when I found ISN! The volume of reliable, informative, trusted information that I found on this site completely overwhelmed me... |
| Wade: Scleredema vs Scleroderma At first look, my doctor thought I might have scleroderma, but after doing blood work, they said my tests came back negative... |
| Mendyon: Mother-in-Law of CREST Patient Unfortunately, as I sit here writing this letter my husband and I are faced with some grim circumstances. She is currently losing her battle to CREST syndrome... |
| Rhonda L: Systemic Scleroderma I have recently been diagnosed with sclerodema, and am still trying to wrap my brain around this... |
| Joan B: Scleroderma and Raynaud's One day in 2000, I was raking leaves and my hands were really cold. I went into the house in pain and my hands looked like I had frostbite... |
| (Update) Donna: CREST, Raynaud's, possible Fibromyalgia It is now one and a half weeks since I had the iloprost infusion and I am very happy to say that my pain has gone in my hands... |
| Alina: Scleroderma CREST Syndrome This site is very helpful as I have been reading articles of people with my condition and can relate to what they are going through... |
| Star S: Morphea and Systemic Scleroderma I was diagnosed with morphea at age seven. Now at age thirty-three, I have recently developed systemic scleroderma with gastrointestinal manifestations, Sjogren's syndrome, inflammatory arthritis, malabsorption... |
| Merry: Deep Morphea They diagnosed it as localized morphea however they did not treat or elaborate... |
| (Update) Tami: Morphea Scleroderma I have, of course, had to give up working, which is okay because I know that I was not able to give my patients my full attention because I didn't feel good. I am an X-ray technician... |
| (Update) Amanda: Diffuse Systemic Sclerosis It’s been just over a year since I took home the diagnosis of scleroderma, and I may as well have taken home a dozen chimps—they would have been less disruptive and more productive... |
| Lucy's Mum: Mother of a Linear Scleroderma Patient I googled 'my daughter has thinning hard skin' and this sclero.org web site came up... |
| Kay: Linear Morphea Scleroderma I saw a dermatologist at Mayo Clinic who included me in Grand Rounds where every dermatologist at the clinic got to see my patches... |
| Dorothy: Scleroderma CREST For this reason I convened a support group in South Africa to help encourage many others with scleroderma... |